"The illness has totally changed our lives"--stress in partners of schizophrenic patients at the onset of illness

Objective: The aim of this study was to investigate how spouses of schizophrenic patients experience the onset of the disease. Based on the narrative analysis of 23 in-depth interviews, the article highlights different aspects of this stressful life event.

Results: The first episode of a schizophrenic disorder leads to severe distress in the spouse of the patient. Emotions of fear, despair and loss of control are especially pronounced if spouses feel that neither their information about the disease nor their supportive resources are sufficient. The illness is often viewed as an existential threat to marriage and family life.

Conclusions: Supportive services for spouses of schizophrenic patients should be offered very closely to the onset of schizophrenia, because the situation is especially burdensome in this period. Interventions should meet the particular needs of spouses. In addition to information about the illness and coping strategies intervention programs should consider issues which are relevant for partnership and parenting roles.