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    Last Updated: 06/27/2025

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    MediFind found 52 doctor with experience in Sturge-Weber Syndrome near Michigan, US. Of these, 44 are Experienced, 7 are Advanced and 1 are Distinguished.

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    LocationClose
    52 providers found
      Distinguished in Sturge-Weber Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Distinguished in Sturge-Weber Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      University Pediatricians

      3901 Beaubien St, 
      Detroit, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Aimee Luat is a Pediatric Neurologist and a Pediatrics provider in Detroit, Michigan. Dr. Luat and is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Epilepsy, Sturge-Weber Syndrome, Parkes Weber Syndrome, and Seizures. Dr. Luat is currently accepting new patients.

      Advanced in Sturge-Weber Syndrome
      Ophthalmology
      Advanced in Sturge-Weber Syndrome
      Ophthalmology

      Regents Of The University Of Michigan

      1000 Wall St, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Hakan Demirci is an Ophthalmologist in Ann Arbor, Michigan. Dr. Demirci and is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Melanoma of the Eye, Metastatic Uveal Melanoma, Uveal Melanoma, Choroid Plexus Carcinoma, and Vitrectomy. Dr. Demirci is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Sturge-Weber Syndrome
      Endocrinology
      Advanced in Sturge-Weber Syndrome
      Endocrinology

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Tobias Else is an Endocrinologist in Ann Arbor, Michigan. Dr. Else and is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Adrenal Cancer, Adrenocortical Carcinoma, Adrenal Gland Adenoma, Neuroendocrine Tumor, and Thyroidectomy. Dr. Else is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Sturge-Weber Syndrome
      Neurosurgery | Neurology
      Advanced in Sturge-Weber Syndrome
      Neurosurgery | Neurology
      1500 East Medical Center Dr, 2nd Floor Taubman Ctr Recp G, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Stephen Sullivan is a Neurosurgery specialist and a Neurologist in Ann Arbor, Michigan. Dr. Sullivan and is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Olfactory Neuroblastoma, Pituitary Tumor, Hypothalamic Tumor, Balloon Sinuplasty, and Hormone Replacement Therapy (HRT). Dr. Sullivan is currently accepting new patients.

      Advanced in Sturge-Weber Syndrome
      Advanced in Sturge-Weber Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Khaled Hafez is an Urologist in Ann Arbor, Michigan. Dr. Hafez and is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Bladder Cancer, Renal Cell Carcinoma (RCC), Muscle Invasive Bladder Cancer, Nephrectomy, and Cystectomy. Dr. Hafez is currently accepting new patients.

      Advanced in Sturge-Weber Syndrome
      Geriatrics | Internal Medicine
      Advanced in Sturge-Weber Syndrome
      Geriatrics | Internal Medicine
      300 Lafayette Ave Se, Suite 4200, 
      Grand Rapids, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Mark Spoolstra is a Geriatrics specialist and an Internal Medicine provider in Grand Rapids, Michigan. Dr. Spoolstra and is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Lung Cancer, Peutz-Jeghers Syndrome, Cowden Syndrome, and Phacomatosis Pigmentovascularis. Dr. Spoolstra is currently accepting new patients.

      Advanced in Sturge-Weber Syndrome
      Neurology | Hospital Medicine
      Advanced in Sturge-Weber Syndrome
      Neurology | Hospital Medicine
      2750 E Beltline Ave NE, 
      Grand Rapids, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Chantal Bhan is a Neurologist and a Hospital Medicine provider in Grand Rapids, Michigan. Dr. Bhan and is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Stroke, Headache, and Thrombectomy. Dr. Bhan is currently accepting new patients.

      Advanced in Sturge-Weber Syndrome
      Internal Medicine
      Advanced in Sturge-Weber Syndrome
      Internal Medicine

      Spectrum Health Primary Care Partners

      4444 Kalamazoo Ave Se, 200 Corewell Health Medical Group West, 
      Kentwood, MI 
      Languages Spoken:
      English, Russian
      Accepting New Patients
      Offers Telehealth

      Yelena Yavich is an Internal Medicine provider in Kentwood, Michigan. Dr. Yavich and is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are PMM2-Congenital Disorder of Glycosylation, Phosphomannoisomerase Deficiency, Sialuria, and Sialic Acid Storage Disease. Dr. Yavich is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Radiology | Neuroradiology
      Experienced in Sturge-Weber Syndrome
      Radiology | Neuroradiology

      Regents Of The University Of Michigan

      1051 N Canton Ctr, 
      Canton, MI 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Aristides Capizzano is a Radiologist and a Neuroradiologist in Canton, Michigan. Dr. Capizzano and is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Stroke, Meningioma, and Subarachnoid Hemorrhage. Dr. Capizzano is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Radiology | Neuroradiology
      Experienced in Sturge-Weber Syndrome
      Radiology | Neuroradiology

      Regents Of The University Of Michigan

      4260 Plymouth Rd, U Of M Sleep Medicine, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Hemant Parmar is a Radiologist and a Neuroradiologist in Ann Arbor, Michigan. Dr. Parmar and is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Primary Lymphoma of the Brain, Sciatica, Cerebellar Degeneration, Stroke, and Tissue Biopsy. Dr. Parmar is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Experienced in Sturge-Weber Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr 1st Floor Rec, Taubman Center, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Matthew Davenport is a Radiologist in Ann Arbor, Michigan. Dr. Davenport and is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Visceromegaly, WT1-Related Wilms Tumor Syndromes, Fibrolamellar Carcinoma, and Neuroendocrine Tumor.

      Experienced in Sturge-Weber Syndrome
      Experienced in Sturge-Weber Syndrome

      X-Ray Consultants Inc

      44405 Woodward Ave, 
      Pontiac, MI 
      Experience:
      15+ years
      Languages Spoken:
      English

      William Masch is a Radiologist in Pontiac, Michigan. Dr. Masch has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Visceromegaly, Fibrolamellar Carcinoma, Alcoholic Cirrhosis, and Boils.

      Experienced in Sturge-Weber Syndrome
      Ophthalmology
      Experienced in Sturge-Weber Syndrome
      Ophthalmology

      Regents Of The University Of Michigan

      1000 Wall St, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Mark Johnson is an Ophthalmologist in Ann Arbor, Michigan. Dr. Johnson and is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Central Serous Chorioretinopathy, and Neuroretinitis. Dr. Johnson is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Radiology | Neuroradiology
      Experienced in Sturge-Weber Syndrome
      Radiology | Neuroradiology

      Regents Of The University Of Michigan

      4260 Plymouth Rd, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Jayapalli Bapuraj is a Radiologist and a Neuroradiologist in Ann Arbor, Michigan. Dr. Bapuraj and is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Chiari Malformation, Chiari Malformation Type 1, Stroke, Posterior Fossa Decompression, and Gastrostomy.

      Experienced in Sturge-Weber Syndrome
      Internal Medicine
      Experienced in Sturge-Weber Syndrome
      Internal Medicine

      Holland Community Hospital

      3235 N Wellness Dr, 120b Internal Medicine North, 
      Holland, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Timothy Conlon is an Internal Medicine provider in Holland, Michigan. Dr. Conlon and is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Myasthenia Gravis, Peripheral Artery Disease, Tourette Syndrome, and Type 2 Diabetes (T2D). Dr. Conlon is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Radiology | Neuroradiology
      Experienced in Sturge-Weber Syndrome
      Radiology | Neuroradiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Diana Gomez-Hassan is a Radiologist and a Neuroradiologist in Ann Arbor, Michigan. Dr. Gomez-Hassan and is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Sciatica, Relapsing Multiple Sclerosis (RMS), Meningioma, and Cerebellar Degeneration. Dr. Gomez-Hassan is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Experienced in Sturge-Weber Syndrome

      Regents Of The University Of Michigan

      1051 N Canton Cntr Rd, University Of Michigan Med Peds Associ, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Katherine Maturen is a Radiologist in Ann Arbor, Michigan. Dr. Maturen and is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Visceromegaly, Boils, Ureterocele, and WT1-Related Wilms Tumor Syndromes.

      Experienced in Sturge-Weber Syndrome
      Experienced in Sturge-Weber Syndrome

      Regents Of The University Of Michigan

      19900 Haggerty Rd, 
      Livonia, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Kimberly Shampain is a Radiologist in Livonia, Michigan. Dr. Shampain and is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Alcoholic Cirrhosis, Visceromegaly, Boils, and Nonalcoholic Steatohepatitis (NASH). Dr. Shampain is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Experienced in Sturge-Weber Syndrome

      Regents Of The University Of Michigan

      380 Parkland Plz, 
      Ann Arbor, MI 
      Experience:
      15+ years
      Languages Spoken:
      English

      Erica Stein is a Radiologist in Ann Arbor, Michigan. Dr. Stein has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Alveolar Soft Part Sarcoma, Rhabdoid Tumor, Rhabdomyosarcoma, and Boils.

      Experienced in Sturge-Weber Syndrome
      Gastroenterology
      Experienced in Sturge-Weber Syndrome
      Gastroenterology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Elena Stoffel is a Gastroenterologist in Ann Arbor, Michigan. Dr. Stoffel and is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Familial Adenomatous Polyposis, Colorectal Cancer, Familial Colorectal Cancer, Colonoscopy, and Endoscopy. Dr. Stoffel is currently accepting new patients.

      Showing 1-20 of 52

      Last Updated: 06/27/2025

      What is the definition of Sturge-Weber Syndrome?

      Sturge-Weber syndrome (SWS) is a rare disorder that is present at birth. A child with this condition will have a port-wine stain birthmark (usually on the face) and may have nervous system problems.

      When should I see a Sturge-Weber Syndrome doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Sturge-Weber Syndrome doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Sturge-Weber Syndrome doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Sturge-Weber Syndrome doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Sturge-Weber Syndrome doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sturge-Weber Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Sturge-Weber Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Sturge-Weber Syndrome doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Sturge-Weber Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Sturge-Weber Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Sturge-Weber Syndrome doctors in Michigan, US?

      Look for the filter feature on the left side of the Sturge-Weber Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Sturge-Weber Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Sturge-Weber Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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