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    Last Updated: 06/27/2025

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    MediFind found 14 doctor with experience in X-Linked Infantile Spinal Muscular Atrophy near North Carolina, US. Of these, 11 are Experienced and 3 are Advanced.

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    14 providers found
      Advanced in X-Linked Infantile Spinal Muscular Atrophy
      Advanced in X-Linked Infantile Spinal Muscular Atrophy

      Duke Health Integrated Practice Inc

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Vern Juel is a Neurologist in Durham, North Carolina. Dr. Juel and is rated as an Advanced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. His top areas of expertise are Myasthenia Gravis, Lambert-Eaton Syndrome, Meige Syndrome, Charcot-Marie-Tooth Disease, and Thymectomy. Dr. Juel is currently accepting new patients.

      Advanced in X-Linked Infantile Spinal Muscular Atrophy
      Neurology | Sleep Medicine
      Advanced in X-Linked Infantile Spinal Muscular Atrophy
      Neurology | Sleep Medicine

      Carolinas Medical Center

      1237 Harding Pl, Suite 3300, 
      Charlotte, NC 
      Experience:
      36+ years
      Languages Spoken:
      English, Hindi
      Accepting New Patients
      Offers Telehealth

      Urvi Desai is a Neurologist and a Sleep Medicine provider in Charlotte, North Carolina. Dr. Desai has been practicing medicine for over 36 years and is rated as an Advanced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. Her top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Dysferlinopathy, and Facioscapulohumeral Muscular Dystrophy (FSHD). Dr. Desai is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in X-Linked Infantile Spinal Muscular Atrophy
      Advanced in X-Linked Infantile Spinal Muscular Atrophy

      Vidant Medical Group LLC

      2100 Stantonsburg Rd, 
      Greenville, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Robert Frere is a Neurologist in Greenville, North Carolina. Dr. Frere and is rated as an Advanced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. His top areas of expertise are Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Gastrostomy, and Stent Placement. Dr. Frere is currently accepting new patients.

      Learn about our expert tiers
      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Experienced in X-Linked Infantile Spinal Muscular Atrophy

      Duke Health Integrated Practice Inc

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Lisa Hobson-Webb is a Neurologist in Durham, North Carolina. Dr. Hobson-Webb and is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. Her top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Chronic Inflammatory Demyelinating Polyneuropathy, and Andersen-Tawil Syndrome. Dr. Hobson-Webb is currently accepting new patients.

      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Experienced in X-Linked Infantile Spinal Muscular Atrophy

      Duke Health Integrated Practice Inc

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Richard Bedlack is a Neurologist in Durham, North Carolina. Dr. Bedlack and is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Spinal Muscular Atrophy Type 3. Dr. Bedlack is currently accepting new patients.

      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Internal Medicine
      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Internal Medicine

      Wake Specialty Physicians LLC

      400 Us Hwy 70 E, 
      Garner, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      George Kryder is an Internal Medicine provider in Garner, North Carolina. Dr. Kryder and is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. His top areas of expertise are Nephrosclerosis, Renovascular Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Kryder is currently accepting new patients.

      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Pediatrics | Internal Medicine
      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Pediatrics | Internal Medicine

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
      Languages Spoken:
      English

      Katherine Despotes is a Pediatrics specialist and an Internal Medicine provider in Chapel Hill, North Carolina. Dr. Despotes and is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. Her top areas of expertise are Cystic Fibrosis, Bronchiectasis, X-Linked Infantile Spinal Muscular Atrophy, and Spinal Muscular Atrophy with Arthrogryposis.

      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Experienced in X-Linked Infantile Spinal Muscular Atrophy

      Charlotte Radiology PA

      10628 Park Rd, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients

      John Grimm is a Radiologist in Charlotte, North Carolina. Dr. Grimm and is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. His top areas of expertise are Subarachnoid Hemorrhage, CAPOS Syndrome, Headache, and Vertigo. Dr. Grimm is currently accepting new patients.

      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Family Medicine
      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Family Medicine
      90 Southside Ave, Suite 350, 
      Asheville, NC 
      Languages Spoken:
      English

      Brad Whitney is a Family Medicine provider in Asheville, North Carolina. Dr. Whitney and is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. His top areas of expertise are Decorticate Posture, Decerebrate Posture, Swallowing Difficulty, and Painful Swallowing.

      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Experienced in X-Linked Infantile Spinal Muscular Atrophy

      Duke Health Integrated Practice Inc

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Janice Massey is a Neurologist in Durham, North Carolina. Dr. Massey and is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. Her top areas of expertise are Myasthenia Gravis, Lambert-Eaton Syndrome, Drug Induced Dyskinesia, Meige Syndrome, and Thymectomy. Dr. Massey is currently accepting new patients.

      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Family Medicine
      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Family Medicine

      University Of North Carolina At Chapel Hill

      590 Manning Dr, 
      Chapel Hill, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Vinay Reddy is a Family Medicine provider in Chapel Hill, North Carolina. Dr. Reddy and is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. His top areas of expertise are Type 2 Diabetes (T2D), Toxic Megacolon, Sciatica, and Opioid Use Disorder. Dr. Reddy is currently accepting new patients.

      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Experienced in X-Linked Infantile Spinal Muscular Atrophy

      Carolinas Medical Center

      1000 Blythe Blvd, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Leo Mccluskey is a Neurologist in Charlotte, North Carolina. Dr. Mccluskey and is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy. Dr. Mccluskey is currently accepting new patients.

      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Family Medicine
      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Family Medicine

      Raleigh Family Practice, P.A.

      4414 Lake Boone Trl, Suite 502, 
      Raleigh, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Andrew Babcock is a Family Medicine provider in Raleigh, North Carolina. Dr. Babcock and is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. His top areas of expertise are High Cholesterol, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Babcock is currently accepting new patients.

      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Family Medicine
      Experienced in X-Linked Infantile Spinal Muscular Atrophy
      Family Medicine
      1108 Pkwy Dr, Suite B, 
      Goldsboro, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Donald Clarke is a Family Medicine provider in Goldsboro, North Carolina. Dr. Clarke and is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. His top areas of expertise are Boils, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Familial Hypertension. Dr. Clarke is currently accepting new patients.

      Showing 1-14 of 14

      Last Updated: 06/27/2025

      What is the definition of X-Linked Infantile Spinal Muscular Atrophy?

      X-linked infantile spinal muscular atrophy is a condition that affects only boys and is characterized by severe muscle weakness and absent reflexes (areflexia). Affected children often have multiple joint deformities (contractures) from birth that cause joint stiffness (arthrogryposis) and impair movement. In severe cases, affected infants are born with broken bones. The muscle weakness worsens over time; affected children reach some early motor developmental milestones, such as sitting unassisted, but these skills are often lost (developmental regression).

      When should I see a X-Linked Infantile Spinal Muscular Atrophy doctor in North Carolina, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Infantile Spinal Muscular Atrophy doctor in North Carolina, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank X-Linked Infantile Spinal Muscular Atrophy doctors in North Carolina, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Infantile Spinal Muscular Atrophy doctors in North Carolina, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Infantile Spinal Muscular Atrophy doctor in North Carolina, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Infantile Spinal Muscular Atrophy doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Infantile Spinal Muscular Atrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Infantile Spinal Muscular Atrophy doctor in North Carolina, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Infantile Spinal Muscular Atrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Infantile Spinal Muscular Atrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Infantile Spinal Muscular Atrophy doctors in North Carolina, US?

      Look for the filter feature on the left side of the X-Linked Infantile Spinal Muscular Atrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Infantile Spinal Muscular Atrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Infantile Spinal Muscular Atrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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