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    Last Updated: 06/27/2025

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    MediFind found 1992 doctor with experience in Phenylketonuria (PKU). Of these, 1504 are Experienced, 358 are Advanced, 110 are Distinguished and 20 are Elite.

    Location
    LocationClose
    1,992 providers found
      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics
      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics

      University Professional Services

      707 Sw Gaines St, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Cary Harding is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Harding and is rated as an Elite provider by MediFind in the treatment of Phenylketonuria (PKU). His top areas of expertise are Phenylketonuria (PKU), Urea Cycle Disorders (UCD), Mitochondrial Trifunctional Protein Deficiency, Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency, and Hepatectomy. Dr. Harding is currently accepting new patients.

      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics
      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics
      2300 Childrens Plaza, 
      Chicago, IL 
      Languages Spoken:
      English

      Barbara Burton is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Burton and is rated as an Elite provider by MediFind in the treatment of Phenylketonuria (PKU). Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Phenylketonuria (PKU), Cholesteryl Ester Storage Disease, and Mucopolysaccharidoses (MPS).

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics
      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics

      University Physicians Incorporated

      13123 E 16th Ave, 
      Aurora, CO 
      Languages Spoken:
      English, French
      Accepting New Patients

      Janet Thomas is a Medical Genetics specialist and a Pediatrics provider in Aurora, Colorado. Dr. Thomas and is rated as an Elite provider by MediFind in the treatment of Phenylketonuria (PKU). Her top areas of expertise are Phenylketonuria (PKU), Homocystinuria, Tyrosinemia Type 1, and Tyrosinemia Type 2. Dr. Thomas is currently accepting new patients.

      Learn about our expert tiers
      Elite in Phenylketonuria (PKU)
      Elite in Phenylketonuria (PKU)
      Hamburg, HH, DE 

      Ania Muntau practices in Hamburg, Germany. Ms. Muntau and is rated as an Elite expert by MediFind in the treatment of Phenylketonuria (PKU). Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Glutaric Acidemia Type 1, Zellweger Syndrome, and Microvascular Decompression.

      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics
      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Harvey Levy is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Levy and is rated as an Elite provider by MediFind in the treatment of Phenylketonuria (PKU). His top areas of expertise are Phenylketonuria (PKU), Homocystinuria, Maternal Hyperphenylalaninemia, and Classic Galactosemia. Dr. Levy is currently accepting new patients.

      Elite in Phenylketonuria (PKU)
      Medical Genetics
      Elite in Phenylketonuria (PKU)
      Medical Genetics
      1600 Sw Archer Rd, 
      Gainesville, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Roberto Zori is a Medical Genetics provider in Gainesville, Florida. Dr. Zori and is rated as an Elite provider by MediFind in the treatment of Phenylketonuria (PKU). His top areas of expertise are Phenylketonuria (PKU), Arginase Deficiency, Urea Cycle Disorders (UCD), and Early Infantile Epileptic Encephalopathy. Dr. Zori is currently accepting new patients.

      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics
      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Dorothy Grange is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Grange and is rated as an Elite provider by MediFind in the treatment of Phenylketonuria (PKU). Her top areas of expertise are Phenylketonuria (PKU), Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita. Dr. Grange is currently accepting new patients.

      Elite in Phenylketonuria (PKU)
      Neurology | Pediatrics | Psychiatry
      Elite in Phenylketonuria (PKU)
      Neurology | Pediatrics | Psychiatry

      University Of Utah Behavioral Health Services

      501 S Chipeta Way, 
      Salt Lake City, UT 
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Deborah Bilder is a Neurologist and a Pediatrics provider in Salt Lake City, Utah. Dr. Bilder and is rated as an Elite provider by MediFind in the treatment of Phenylketonuria (PKU). Her top areas of expertise are Phenylketonuria (PKU), Autism Spectrum Disorder, West Syndrome, and Myoclonic Epilepsy. Dr. Bilder is currently accepting new patients.

      Elite in Phenylketonuria (PKU)
      Elite in Phenylketonuria (PKU)
      Heidelberg, BW, DE 

      Nenad Blau practices in Heidelberg, Germany. Mr. Blau and is rated as an Elite expert by MediFind in the treatment of Phenylketonuria (PKU). His top areas of expertise are Phenylketonuria (PKU), GTP Cyclohydrolase 1 Deficiency, Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency, and Folate Deficiency.

      Elite in Phenylketonuria (PKU)
      Elite in Phenylketonuria (PKU)
      Zurich, ZH, CH 

      Beat Thony practices in Zurich, Switzerland. Thony and is rated as an Elite expert by MediFind in the treatment of Phenylketonuria (PKU). Their top areas of expertise are Phenylketonuria (PKU), Urea Cycle Disorders (UCD), GTP Cyclohydrolase 1 Deficiency, Ornithine Transcarbamylase Deficiency, and Hepatectomy.

      Elite in Phenylketonuria (PKU)
      Elite in Phenylketonuria (PKU)
      Lisbon, PT 

      Julio Rocha practices in Lisbon, Portugal. Mr. Rocha and is rated as an Elite expert by MediFind in the treatment of Phenylketonuria (PKU). His top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Tyrosinemia Type 3, Infantile Refsum Disease, and Gastrostomy.

      Elite in Phenylketonuria (PKU)
      Elite in Phenylketonuria (PKU)
      Steelhouse Lane, 
      Birmingham, ENG, GB 

      Anita Macdonald practices in Birmingham, United Kingdom. Ms. Macdonald and is rated as an Elite expert by MediFind in the treatment of Phenylketonuria (PKU). Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Tyrosinemia Type 1, Gastrostomy, and Liver Embolization.

      Elite in Phenylketonuria (PKU)
      Elite in Phenylketonuria (PKU)
      Steelhouse Lane, 
      Birmingham, ENG, GB 

      Sharon Evans practices in Birmingham, United Kingdom. Evans and is rated as an Elite expert by MediFind in the treatment of Phenylketonuria (PKU). Their top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Argininosuccinic Aciduria, Ileostomy, and Colostomy.

      Elite in Phenylketonuria (PKU)
      Elite in Phenylketonuria (PKU)
      Steelhouse Lane, 
      Birmingham, ENG, GB 

      Alex Pinto practices in Birmingham, United Kingdom. Mr. Pinto and is rated as an Elite expert by MediFind in the treatment of Phenylketonuria (PKU). His top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Fructose-1,6-Bisphosphatase Deficiency, and Citrullinemia.

      Elite in Phenylketonuria (PKU)
      Elite in Phenylketonuria (PKU)
      Rome, IT 

      Vincenzo Leuzzi practices in Rome, Italy. Mr. Leuzzi and is rated as an Elite expert by MediFind in the treatment of Phenylketonuria (PKU). His top areas of expertise are Phenylketonuria (PKU), Drug Induced Dyskinesia, Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency, Movement Disorders, and Deep Brain Stimulation.

      Elite in Phenylketonuria (PKU)
      Elite in Phenylketonuria (PKU)

      University Medical Service Association Inc

      12901 Bruce B Downs Blvd, 
      Tampa, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Amarilis Sanchez-Valle is a Medical Genetics provider in Tampa, Florida. Dr. Sanchez-Valle and is rated as an Elite provider by MediFind in the treatment of Phenylketonuria (PKU). Her top areas of expertise are Phenylketonuria (PKU), Early Infantile Epileptic Encephalopathy, Ornithine Transcarbamylase Deficiency, and Ornithine Translocase Deficiency. Dr. Sanchez-Valle is currently accepting new patients.

      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics
      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics

      Valley Childrens Medical Group

      1524 Mchenry Ave, 
      Modesto, CA 
      Languages Spoken:
      English
      Accepting New Patients

      David Dimmock is a Medical Genetics specialist and a Pediatrics provider in Modesto, California. Dr. Dimmock and is rated as an Elite provider by MediFind in the treatment of Phenylketonuria (PKU). His top areas of expertise are Phenylketonuria (PKU), Increased Head Circumference, Micrognathia, and Noonan Syndrome. Dr. Dimmock is currently accepting new patients.

      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics
      Elite in Phenylketonuria (PKU)
      Medical Genetics | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow and is rated as an Elite provider by MediFind in the treatment of Phenylketonuria (PKU). Her top areas of expertise are Phenylketonuria (PKU), 1p36 Deletion Syndrome, Maple Syrup Urine Disease, and Orotic Aciduria Type 1. Dr. Sacharow is currently accepting new patients.

      Elite in Phenylketonuria (PKU)
      Pediatrics | Medical Genetics
      Elite in Phenylketonuria (PKU)
      Pediatrics | Medical Genetics

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chester Whitley is a Pediatrics specialist and a Medical Genetics provider in Minneapolis, Minnesota. Dr. Whitley and is rated as an Elite provider by MediFind in the treatment of Phenylketonuria (PKU). His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A), and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Whitley is currently accepting new patients.

      Elite in Phenylketonuria (PKU)
      Elite in Phenylketonuria (PKU)
      Nancy, FR 

      Francois Feillet practices in Nancy, France. Mr. Feillet and is rated as an Elite expert by MediFind in the treatment of Phenylketonuria (PKU). His top areas of expertise are Phenylketonuria (PKU), Lysosomal Acid Lipase Deficiency, Cholesteryl Ester Storage Disease, Wolman Disease, and Gastrostomy.

      Showing 1-20 of 1,992

      Last Updated: 06/27/2025

      What is the definition of Phenylketonuria (PKU)?

      Phenylketonuria (PKU) is a rare condition in which a baby is born without the ability to properly break down an amino acid called phenylalanine.

      When should I see a Phenylketonuria (PKU) doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Phenylketonuria (PKU) doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Phenylketonuria (PKU) doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Phenylketonuria (PKU) doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Phenylketonuria (PKU) doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Phenylketonuria (PKU) doctor search results page. 

      Why is it important to get a second opinion from a different Phenylketonuria (PKU) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Phenylketonuria (PKU) doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Phenylketonuria (PKU) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Phenylketonuria (PKU) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Phenylketonuria (PKU) doctors near me?

      Look for the filter feature on the left side of the Phenylketonuria (PKU) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Phenylketonuria (PKU) doctor that offers video calls?

      Look for the filter feature on the left-side of the Phenylketonuria (PKU) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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